During eight years of cancer caregiving for my late wife Linda, who passed away six years ago this day on March 26, 2013, I grew to understand many things about other people. How some have such a heart for others. How giving they could be. How friends willingly took on chores too difficult to imagine. All of it done without judgment. These things came true in our lives.
There were also mysteries that were beyond explanation and should remain that way. During one period of time when I was out of work to take care of her needs, we sat together at our dining room table and added up the money needed to cover our bills. We’d already paid the $2000 COBRA monthly premium for health insurance. That was absolutely vital or we’d be broke in a minute from a running list of medical bills that came our way. These included chemotherapy treatments and surgeries that cost tens of thousands of dollars. In the days before the Affordable Care Act and protection from pre-existing conditions, clinging to your health care was a life or death matter.
Somehow we made it week-to-week, month-to-month and year-to-year. But sometimes we just turned to prayer for help. So it was that we determined the need for $3500 to cover the rest of our bills. During periods when I had to be out of work to take care of her, I’d hustle up freelance work to cover our bills and more.
But it was stressful. Sometimes we’d be pressed financially, and it was on one of those nights that we added up the bills, said our prayer and got her into bed to rest.
The next morning I came out to the kitchen to make her oatmeal and heard the front door mail slot creak open and shut. Whatever fell through the door made a solid thump on the floor. I walked out to check on the delivery because people were often bringing us food and other requests made through our caregiving website.
This package was different. The envelope was thick and bulging. I picked it up and opened the tab. Inside was a wad of money. $3700 worth.
I broke into quiet tears and stood there looking out the door. Whoever dropped off that envelope and collected that money was already gone. To this day I have inklings about who might have gathered that cash but in many respects prefer to leave it as a mystery. That’s what the folks who gave us the money apparently wanted. We used it wisely and gave a prayer of gratitude in response.
Yes, it’s been six years since my late wife passed away. But the kindness and grace of others that sustained us has never left my mind. I know it never left her mind either. In so many ways the support of others kept her alive during all those years in and out of remission after her initial diagnosis. We drew on that support for strength and hope during periods of both sickness and health. Our children felt that support, and in the ensuing years that remains an important part of our collective grieving process. Last year we held a memorial gathering in her honor. Rightfully so.
She and I met in 1981 and were married for twenty-eight years. Yet in many ways, we were also married to the world around us. It was that bond of vulnerability and hope that drew on the strength of others and became our main source of pride. The Right Kind of Pride.
I am reading this post today, on Easter Sunday.
My eyes welled up in thinking of what you and she endured, the kindness of others, and the kindness of people around me during this rather egregious 14-year battle with MS: my husband, family, and friends, including Gale and Jane and others. And what ultimately is most important in this life.
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Thank you for the message. It is hard to understand or accept when things like what you’re going through enter our lives. I called an artist friend on Saturday that has been having a tough time with an illness. He has kept painting despite swelling and pain. In so many ways that is what we must keep doing. My late wife gardened even when the skin on her hands was messed up. She’d pull on gloves and keep at it. MS is so different than many other conditions it seems. The friends that I know sort of live in an “opposite world” with bodies that heat up so easily yet one of them ran because it helped? So I do wish you relief where you can find it. And life itself seems an irony with so many contrary aspects. Chris
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