Tag Archives: cancer survivorship

On the gains of dealing positively with loss

IMG_8031This coming Wednesday, March 4th I am speaking about the subject of loss for Lenten Services at Bethlehem Lutheran Church. I have already met with the Pastor to orient the discussion, which will center on how our family dealt with the loss of my wife due to cancer. So the topic is fully on my mind.

Last night I woke up at 2:00 with thoughts rolling through my head. I grabbed my iPhone and entered them into the Notes app. If you don’t write these thoughts down somewhere it’s so easy to forget what they are.

This was stream of consciousness stuff, so it’s not grammatically correct. Not even complete sentences. In some respects it’s better that way.

Sometimes your gain is your loss (hiding cancer) and your loss is your gain (blessings from caregiving and community). Blessed to be a blessing to others. Loss of activity. Loss of identity. Careful to recognize loss of hope. Blessings are miracles in real time versus miracles out of time.

Here’s what it all this means.

I have a friend whose husband had cancer and chose to hide it from everyone for two years. She was imprisoned in this world where he suffered through treatments and she could not talk about it to anyone. His concerns over his own vulnerability were what motivated him. He did not want to be seen as a cancer patient. This approach was actually part of a larger pattern of controlling behavior stemming from his unwillingness to accept the very real fact of his underlying depression. His “gain” in protecting himself from outside scrutiny was actually a loss in terms of letting others truly help him and their family. That made it all the tougher for my friend to endure.

Sharing burdens

How different (and difficult) that approach was compared to choosing to share your burdens with others. The very first week my wife was diagnosed with ovarian cancer one of her friends (actually her boss) reached out to our family. We were so grateful to have that support. To her enormous credit this woman guided us through multiple rounds of treatment and needs over the next eight years. That was a gift that can never be repaid.

At times the blessings of that care were so great we felt compelled to share our blessings with others. That opened up channels of communication for people who confided in us. Some of these needs were simple. People actually apologized for expressing concerns about their situation. “I know my troubles are nothing compared to what you’re going through,” they’d often begin. “But I’m worried…”

Worry is almost always over losing something in our lives. We worry that we might lose our jobs with an illness or other difficulty. We worry about losing money. We worry about losing friends or relationships. We worry about losing the respect, trust or love of our friends and family members. The feeling of loss in our lives is almost constant. We’re always losing something, aren’t we? And we worry about it.

Recovering from loss

There’s a great passage in the Bible where a woman loses a coin and tears her house apart trying to find it. When she does recover the coin she calls her friends together to celebrate. That’s a metaphor for how God feels about lost souls. There is a universal tie that binds us when it comes to loss of spirit. We even speak of “losing our way” in life. That feeling of being lost and knowing loss is most difficult to transcend. Some people never pull free. They live with the feeling they are losing the battle. God doesn’t want us to live that way.

Maple leaf in rainBut even if you are not religious, there is sustaining hope in the very fact of life. You are here. You exist. You are the miraculous product of billions of years of evolution. You have free will. The choices you make do matter. You can choose to live in accord with all of human life and all of nature.

I choose to draw strength from both those scenarios. For me, the defining unity between God and material reality is love. It’s a very real thing, you know. It exists. It does great things. It sustains hope and heals wounds both physical and material. And as far as I can tell, God is love.

It is what it is

In our case we objectified our losses to gain some grasp of where the blessings still abided. Our phrase was “It is what it is,” That meant the cancer. The treatments. The loss of activities and joy in life. All that constituted loss

Cancer even caused us to lose insurance. Lose jobs.

But we never lost hope. That was the one thing we refused to lose.

Identifying with hope

Ultimately my wife lost her life to cancer. But she never lost her identity in the journey toward that moment. She retained her character. Refined it, in fact. At times it was something to witness. At other times it was something to support, encourage and even cajole. It was not always easy.

When she lay in bed after dying I touched her lips and told her that I was very proud of her. Hence the title of this blog and my book about our survivorship journey. The Right Kind of Pride.

Miracles happen

We’d seen miracles in our lives together. These were not miracles that necessarily broke the laws of nature. But they were miracles of love and beneficial consequence. Favors of love and care that transcended expectations. Money that arrived through gifts when we desperately needed it. All sorts of things transpired that left us in grateful, happy tears.

So you can see why that stream of consciousness at 2:00 in the morning feels rather profound. It may seem jumbled in the cold light of day. In fact it is clear that loss is real, but you can thrive in the face of it. We all must do that, for loss is everywhere. From small objects to entire dreams, hope and loss stand in delicate balance. Choose not to lose hope and loss becomes something you can handle.

Sometimes life does not seem fair. We still need to take responsibility and pride in our hope when facing difficult circumstances. Then loss does not possess us.

The Right Kind of Pride is available on Amazon.com.

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On working under pressure

The little brick bungalow in which our family lived for 10 years when the kids were little had only 750 square feet of living space. The house was cute, in other words, but not spacious. It also had one bathroom. That meant that when repairs were needed it took some planning to make it happen without putting everyone in jeopardy.

The tub was old and we hired some contractor to coat it with some form of material popular at the time. The wall tile needed to be replaced as well. The vanity was rickety. The toilet was too. Even the floor tile was due for a change.

I scheduled the entire makeover for a single weekend. It was an ambitious plan for sure. My wife and kids went to grandma’s house from Friday through Sunday night. It was just me and the bathroom for the weekend.

Planning

The work went well. It was all planned out in my head. The wall tile was tough to do because the plaster came loose from the backing. That meant a major patchup with wallboard compound was necessary. I never knew whether that was advisable, but it worked. That’s what counts around the house. It worked.

The sink and vanity and toilet came out and the floor tile was torn up. Underneath were rotted floorboards. A quick trip to the lumber store fixed those, and a lot of nails.

Panic

Now that the entire bathroom was stripped down it was late at night. Midnight to be exact. I’d worked solid for 14 hours and was pretty tired. And then it hit me. I really had to go to the bathroom. Number two. There was no toilet now. Just a dark hole in a flat floor.

That was a humbling situation, but I made it happen. It struck me that for thousands of years in human history this is how people got it done. One way or another, it all came down to one thing. Squat and go. No need to flush. No modern plumbing. Just a lone sole over a dark hole.

Preparation

The next morning it was time to put in the wall tile and the floor tile. That took a few hours. The grout was done on the wall while the floor set. Then I put the seal down for the new toilet and put the new bowl into place. Like Tom Hanks in the movie Castaway I stood back and admired the modern contraption that plumbing really represents. All that to take care of our excrement. The world really is a humbling, confusing place at times.

All this work had to be done with care to avoid bumping into the new sealant on the tub, which was sprayed into place and therefore delicate for the first 48 hours.

It all got finished at exactly the moment my children came running back into the house yelling, “Daddy can we see the new bathroom!” Of course they also used it right way. That first flush of the toilet made me proud. Same with the working faucet on the sink. My wife walked in and said, “Is it safe?”

Pushing it

I secretly laughed but assured her that everything had worked out well. I shared the “poop in the dark hole” story and she just shook her head. No need for details, she told me. We all did our business while I kept reminding them to walk gingerly on the new floor. The grout was barely dry. But it held.

That’s not really a good way to do a bathroom makeover. It’s a simple truth that necessity demands a combination of determination and humility at times. The rewards of success outweigh the tough moments of personal doubt. In the end, that’s the right kind of pride.

Christopher Cudworth is author of the book The Right Kind of Pride, a chronicle of cancer survivorship and facing life challenges in a positive way. It is available on Amazon.com. 

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Organizing things by heart

It is said that when you know something “by heart” it means you have it memorized. You also know it so well that you can play or recite it with minimal effort, but perhaps more emotion.

The flip side of knowing something by heart is being unable to recall anything about a song, a poem or a business speech for that matter.

In between there lies a zone where most of us operate day to day. We are organized enough to function and know enough things “by heart” to get along and get our work done. We know the path to our jobs or other obligations.

Stuff

Keeping up appearances and being organized can become a job in itself. When life interrupts with multiple demands, our organizational systems can fall apart. Or, we accumulate stuff by habit. We promise to go through and sort it all out someday. Often that someday never comes or the need arises much sooner than we’d like.

My late wife pulled me close to her a few weeks before she died and said to me, “Chris, I’m sorry about all the junk.” We’d been so preoccupied with all the health care issues and making finances work that talking about our broader needs was just not possible. “I wanted to clear it out,” she told me. It was true. We’d accumulated some layers of stuff in 28 years of marriage. It was sweet that she was concerned how much work it would take to go through.

Doing the hard work of sorting through keepsakes versus clutter can be challenging. That sometimes emotional task is only compounded when grief is woven through the choices. I found welcome homes with women friends for much of my wife’s clothing. Same went with her jewelry. We held a nice party at which friends could choose from the jewelry pieces she’d collected, many of them hand-crafted by her talented sister.

Fixations

BathroomThe process of de-cluttering the house and moving forward has taken more than a year. There is still much to do.

In the meantime it was time to fix a broken shower in the master bedroom. We’d jury-rigged that thing for years because it was always inconvenient to get it fixed with everything else going on. Plus it required knocking out some shelves to gain access to the plumbing inside the wall. I tore down the old blue tile and carefully chose a new look. My daughter’s boyfriend climbed into the space between the walls and installed new plumbing. No more leaks or creaky shower handles.

The whole operation took six months but it is finished. That let me organize things all over again in the bathroom. During the process there were tile boxes and hammers and drills, nails and screws and grout bags. It was a mess, and it spilled into the organization of other things in life. The bedroom was a cluttered mess. Too much other stuff was always in the way. Plus there was the mental process of wanting that bathroom finished.

Mixology

There was grief mixed in with that as well. For years my wife had put up with that creaky bathroom where the hot water would sometimes come shooting out at you like a fire hose. I felt some guilt in never having completed that while she was living.

I’m also very forward-looking in all these matters. To be emotionally healthy we need to organize things. We also need to be organizing things by heart. There is something about a cluttered mess that prevents real and healthy grieving. It also prevents you from moving on and finding that place where memories are not so much cluttered as they are appreciated. More can be shared in this world if we don’t allow things to remain or become a mess.

Sock drawer of the soul

That’s not to say that getting messy emotions out where you can see them is a bad thing. Quite the opposite. For a casual example, sorting through daily ideas or a lifetime of memories is quite akin to organizing a sock drawer. There’s an understanding and a peace that comes with things paired up as they should be. It happens the same way with photo albums and other keepsakes. We really need to sort through it all to appreciate their significance.

Ultimately, some of it needs to be given or thrown away. We can’t keep everything. Nor should we try.

Yet I decided after a year of experimenting that the appropriate way to encase our wedding rings was to place them on a bed of corks saved from years of wine we shared together. I used to buy “Wine for a Year” and it was a fun gift to open one of those bottles each month.

It’s also a fact that in these matters of the heart, no one else can do the work for you. Yet it is also important to share. I have not shied away from talking about my late wife with my current companion. Even my wife’s best friend turned to me recently and said, “Did you know that Linda told me that she knew you would date after she was gone?”

Statements like those are gifts to be shared when it is time to open them. This entire process of organizing things by heart does not happen all at once. We process. We grieve. We celebrate. We share.

It is not perfect. I am not perfectly organized and never will be. But the commitment to live well actually honors all those whose lives impact you, and whose lives you impact. And thank God for that.

Christopher Cudworth is author of the book The Right Kind of Pride, a chronicle of cancer survivorship and facing life challenges in a positive way. It is available on Amazon.com. 

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